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Navigating Your Concussion/Traumatic Brain Injury

What follows is a brief overview of concussion or traumatic brain injury (TBI) from a combination of personal research and personal experience. It should not replace medical advice or treatment from a medical professional, but you may find it helps you through your own recovery, or helps give you some insight into what TBI can be like.



What is Concussion/Traumatic Brain Injury (TBI)?

Traumatic brain injury, or TBI, occurs when the brain is shaken inside the skull. This can occur from a blow to the head, falling on the head, or from events like whiplash where there is no injury to the head but the force of movement causes the brain to slosh around and bang into the skull.

Bruising occurs and the neural pathways that your brain uses to accomplish everything can be damaged. This may mean that before the TBI you could catch a ball in the air, but after you may find you have to relearn how to do this - because the body has to create new neural pathways for the skill or action.

Signs and Symptoms

No two concussions are necessarily alike. A small knock sometimes causes more damage than a big knock. We don’t entirely know why, it could be because of the area that took the brunt of the damage (either externally or internally), because of underlying factors, or previous knocks to the head. Sometimes a small knock can cause big problems, and sometimes a big knock can leave the patient seemingly unaffected.


Because the brain controls the rest of the body - from moving and orienting yourself in space, receiving sensory information (sight, smell, taste, sound, touch), to complex thought processes, logic, and our feelings and emotions - a TBI can have wide ranging symptoms.


This isn’t an exhaustive list, just a sampling of what you or someone with TBI may be experiencing.



Physical Symptoms: nausea, dizziness, loss of balance, loss of coordination, headaches, sensory overload, lack of energy, tiredness, fatigue, shaking/trembling, blurred vision, visual disturbances (eg. Odd points of light or looking at something and not seeing it), choking, difficulty swallowing, issues sleeping, changes in libido, changes in digestion/menstruation/body clock


Mental Symptoms: sluggish thinking (like your brain is full of mud or cotton wool), strange logic, fixating on topics, memory loss - short term/long term, lack of motivation, personality changes, lack of reason, loss of objectivity, forgetfulness, being convinced you’re being logical when you’re not, anxiety, depression, exacerbation of mental health issues, exacerbation of addiction issues


Emotional Symptoms: emotional imbalance, distraught crying for long periods of time, anger, frustration, sudden emotional outbursts or upset (often over something small or over nothing at all), feelings of hopelessness, feeling out of control,


Avenues of Treatment and Support

Many medical professionals are not trained to deal with TBI. It’s an area where we are learning more all the time, but we are far from mastering the treatment and management.

Your doctor or GP, or accident and emergency at the hospital are often your first port of call. It’s important to ask them for an ACC claim and a referral to the Concussion clinic - this is funded by ACC and (at the time of writing) there are no surcharges, so this is a great way to get free access to help across a broad spectrum of professions.


The concussion clinic can put you in touch with doctors, occupational therapists, physiotherapists and counsellors or psychiatrists and they’ll coordinate your recovery.


If you don’t have access to a concussion clinic, you can contact Brain Injury New Zealand. They have representatives across New Zealand and offer a range of services. They can help put you in touch with the help you need, support groups, and can advocate for you if you’re finding it hard to chase things up on your own.


If you have supportive friends and family around who are happy to help out they’ll be invaluable in your recovery - if you educate them properly! You’ll need to explain to them as best you can what’s going on, how you’re feeling, what you’re struggling with and what you need help with. If you can do this they can be as much help as the professionals.


Personally, I found the concussion clinic to be useful and got the best results from combining therapy with acupuncture, light therapy, support from friends and family, and diet and lifestyle changes.


Finding what will work best for you will be a matter of trial and error. For me, no one thing was the magic bullet. It took time, a lot of patience (not my strong suit), and a careful balance of a number of things for me to start climbing out of the concussion hole and to start regaining my energy and ability to function again.

Things that I found useful

Rest is your best friend. If your injury is significant, you’re going to need to take some time off work. For some it’s only a matter of a few weeks, for others it could be longer.

Don’t try to push through, if the injury is bad and you’re struggling, working will only slow your recovery down.


I’m going to say that again - TAKE TIME OFF TO RECOVER.


This is your brain we’re talking about, the Kiwi ‘she’ll be right’ attitude or ‘walking it off’ won’t work for everyone. You don’t want to take unnecessary risks with your brain, and believe me - you REALLY don’t want to be slowing your recovery. I’m three years into my recovery and it gets frustrating to say the least.


In my personal journey of recovery I found three things to be more important than anything else. These are not ground breaking - they’re important when managing all health concerns.


The corner stones of my recovery were good sleep, good food and gentle movement.


When you are recovering from a TBI you are often working with drastically reduced energy levels. I had days when I would wake feeling good and like I had energy again, then the act of putting on pants and making breakfast would use up all of that energy and I would have to go back to bed for a nap.


There were times when I went whole weeks feeling like I was floating through life, not entirely present and too tired to really even care.





Sleep is paramount. Anything you can do to improve your sleep (without causing yourself stress or worry over sleeping, that’s the tricky part) is a good investment. Staying off screens an hour or so before bed, avoiding stimulants or conversations or activities that will hype you up, and making sure you are sleeping in a dark, quiet room that won’t get too hot can all help.


For me, good sleep was hard to come by in those early months. I still relapse from time to time and experience periods of insomnia that make daily life nearly impossible. To counter this, and to ensure I didn’t get too stressed out about my sleep, I took to napping.


I scheduled in two 15 minute rest stops every day. I go somewhere dark and quiet, or use earmuffs and an eye pillow, set a timer so I don’t over sleep, and I lie down and focus on my breathing. If I sleep, great! If I don’t, I find that 15 minutes of sensory deprivation and quiet time is enough to reset my body. It can cure headaches and mood instability, and it means I can get up and get a few more things done rather than spending the whole day in bed.


Good food is for the most part the usual advice. Eat clean - avoid processed foods and junk foods. Your brain will be craving stimulants to combat the constant tired feeling, but don’t take them. Energy drinks and other stimulants will make you feel better in the short term but will slow your recovery in the long term. They’re like poison for your brain.


Likewise if you can avoid alcohol during your recovery your brain will thank you for it.


Advice on what to eat varies, and again (aside from avoiding junk food, energy drinks and stimulants, these should be avoided at all costs) I suggest you take a trial and error approach. Foods high in nutrient density and antioxidants are generally best, and some suggest following a low glycemic index diet.


For me personally I found eating mostly fresh vegetables and fruit (with plenty of leafy greens), some red meat, fish and avocados to be my winning combination. If I stick to these foods I improve, my energy lifts and I can cope with life. When I fall off the bandwagon or forget, or think I don’t need to anymore I notice I start to slip down again - energy levels fall, my thinking gets foggy, and I have more emotional outbursts.





Gentle movement was for me the hardest part. I’m used to hard exercise, really working up a sweat, and coping with life by moving. Some people find exercise beneficial when recovering from a TBI - in my case pushing beyond a walk only made me worse.


The hard part was that not moving at all made it worse too. It took me a long time to figure out a balance here, but for the most part I could go for gentle walks and my body responded well to this. It was always better if I walked in the bush or somewhere quiet rather than in strong wind or along a busy road - as too much noise overwhelmed my brain.


Other things I found useful was getting plenty of sunshine, going swimming or taking showers, and socialising. The key to everything was moderation - these things in the right amount made me feel better. Too much of things made me worse. For instance, if I don’t socialise I suffer mood wise and emotionally. But if I try to socialise too much I get exhausted and overwhelmed.


Trial and error will find your middle ground. The hard part is often keeping track. The frustrating part of TBI is if it affects your memory you’ll have a hard time recalling what helps and what doesn’t, or how long you’ve been doing something.


One of the things I used to help with this was the whiteboard method. I found myself a large whiteboard and drew a grid on it. Days of the week went across the top, and down the left hand side I wrote things I knew made me feel better - eating well, sleeping well, napping, socialising, sunshine, gentle exercise.


I then ticked off the things I did on each day of the week. So long as I kept in mind that three ticks was a good day and didn’t try to tick every box every day and wind myself up about not ticking enough things off, this helped me look back and keep track. Often I’d have a bad day and then sulk as I couldn’t remember having done anything wrong. When I started using the white board if I had a bad day I could look back - often I would find I hadn’t eaten well the last few days, or my sleep had been rubbish, or I’d missed my naps. This was a huge help for me.


I also put together a sliding scale of concussion. Once I had enough brain power (this took a while), I sat down and listed out all the signs and symptoms I was experiencing and all the things I had found that helped ease them. I then listed it out on a rough scale from 1-10, symptoms on one side and things that might help ease them on the other.


This was great on the days when I couldn’t remember what was working, and it was a useful tool for my friends and family too as it gave them some things to suggest if they saw me suffering, and some suggestions for ways they might help.



Stress

Stress is by far the biggest cause of backsliding. If you get wound up by the whole ordeal (and you will, I know I still do from time to time) this will stress you out, chew up your energy and wipe you out. Stress on any level is exhausting when you’re recovering from a TBI, be it physical, mental or emotional.